Article: Cancer Rehabilitation in Denmark – The Growth of a New Narrative

By Helle Ploug Hansen and Tine Tjørnhøj-Thomsen

https://doi.org/10.1111/j.1548-1387.2008.00035.x

Abstract: A fundamental assumption behind cancer rehabilitation in many Western societies is that cancer survivors can return to normal life by learning to deal with the consequences of their illness and their treatment. This assumption is supported by increasing political attention to cancer rehabilitation and a growth in residential cancer rehabilitation initiatives in Denmark (Danish Cancer Society 1999: Government of Denmark 2003). On the basis of their ethnographic fieldwork in residential cancer rehabilitation courses, the authors examine the new rehabilitation discourse. They argue that this discourse has challenged the dominant illness narrative, “sick-helped-cured”, producing a new narrative, “sick-helped-as if cured,” and that this new narrative is produced and reproduced through technologies of power and the self.

This article discusses shift in the ways that the biomedical establishment deals with the disconnect between being “cured” and being “well. The article points out out that the dearth of rehabilitation care can be attributed in part to increased survivor rates; the treatment paradigm is no longer just preparing patients for the possibility of death but providing care post treatment. The “cancer establishment” has begun to address that need through rehabilitation programs, which help patients navigate the difficulties of post treatment side effects. The article also discusses patient anxieties over relapse, social stigmas, and the moral value society attaches to patients participation in rehabilitation programs. Hanson points out that rehabilitation still brings up issues of normality vs deviance, assuming normality can be achieved through participation in the program. We see underlying this model the same assumptions about willpower and personal responsibility that are embedded in mainstream narratives about cancer treatment and survivorship.

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Book: Surface Tensions: Surgery, Bodily Boundaries, and the Social Self

By Lenore Manderson

Pg. 142

Surface Tensions is an academic text that explores the traumas of surgery, especially the way it shapes personal identity. It also interrogates with the meanings of commonly accepted terms such as “normality” and “healing”.

Pg. 24

Essentially, Manerson says, we are socialized to have a very particular idea of how our body ought to function and what it will be like as it ages. Any disruption to that causes a profound cognitive dissonance and “ushers in an existential reckoning”.

Cancer figures heavily into Manderson’s research. The preface chronicles the story of Perdita, a middle aged woman,who has undergone surgical interventions for both breast and colon cancer. Although her cancer has been removed, her mastectomy scar and colostomy bag affect her ability to engage in intimacy and feel desirable, and she often copes with feelings of embarrassment and awkwardness. Distress about the changes brought about by surgery also figure heavily into the other narratives discussed on this website, making Surface Tensions both a useful theoretical text and a source of narratives in and of itself.

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Stitches

Stitches is an autobiographical graphic novel about author David Small’s childhood experience with cancer. Small’s family is abusive and neglectful, and his parents delay his treatment and conceal from him the very fact that he had cancer in the first place. It is eventually revealed that his tumor was caused by the numerous X-rays his radiologist father gave him. An operation to remove the tumor removes all but one of his vocal cords and rendered him a virtual mute. Rather than focusing on battling cancer, this work centers its narrative on the potentially lifelong complications caused by treatment, the paradox of being simultaneously considered well and gravely ill, and paternalism in medicine.

Key outtakes:

Pg. 132

In this panel, Small has finally been taken to see a doctor about a growth in his neck, and is misdiagnosed with a sebaceous cyst.

Pg. 168

This scene takes place immediately after Small’s first operation, where it is discovered that his cyst is in fact cancer. Here, the doctor’s eyes look menacing, and he seems shifty as he tells what we soon discover to be a bald faced lie.

Pg. 204

In this panel Small discovers a letter written by his mother to his grandmother, and learns that he has had cancer the whole time. Small displays an obvious sense of betrayal at this revelation, but due to the emotional and physical neglect of his family he simply withdraws into himself rather than confront them.

Pg. 190

In this panel Small examines his scar for the first time. Although he has been cured of his cancer, the size and messiness of the cut tells the reader that the real wound is that this operation has been conducted far too late, with serious complications, and without his full consent.

His resulting inability to speak above a whisper completely destroys his social life. He describes becoming effectively invisible at school, and begins cutting class and spending time with social dropouts.

Pg. 238

Small’s parents react poorly when he finally confronts them about his operation, angrily justifying their decision to keep everything from him.

Pg. 287

Here is the book’s final twist: the many unnecessary radiation treatments Small’s father gave him as a child were the source of his cancer. In the mainstream narrative, cancer is internal (genetic or spontaneous) or self inflicted (smoking) or occasionally environmental. Rarely is it something inflicted by a loved one in a pattern of medical abuse.

This completely destroys what is left of his relationship with his parents. After this revelation, he moves out of his house entirely at age 16.

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